Links

 

GENDIA (http://www.gendia.net)
Website of GENDIA, an  international network of genetic labs, offering more than 1000 different genetic tests.

GENDIA FOUNDATION (http://www.gendia-foundation.net)
Website of the GENDIA FOUNDATION, a non-profit organisation offering free genetic tests for those who cannot afford them.

GENETESTS (http://www.geneclinics.org)
Website with information on genetic diseases, genetic tests, and labs (mainly US) offering these tests.

GENETIC ALLIANCE (http://www.geneticalliance.org)
Website of the Genetic Alliance, an international coalition comprised or more than 600 advocacy, research and healthcare organizations represent individuals with genetic conditions.  The site contains information on hereditary diseases, patient support groups, terminology in the genetics, and hot topics in genetics.

GENETIC INTEREST GROUP (GIG) (http://www.pharmaco-gendia.net)
Website of GIG, a national alliance of organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders to promote awareness and understanding of genetic disorders.

GENETICS EDUCATION CENTER (http://www.kumc.edu/gec/)
Website of the University of Kansas with information on genetic terminology, drawings, hereditary diseases, genetic tests, patient support groups, the Human Genome project, art in genetics, books and brochures.

MEDLINE PLUS (http://www.nlm.nih.gov/medlineplus/geneticdisorders.html)
Website of the American National Library or Medicine with information on hereditary diseases, genetic tests, prenatal diagnosis, genetic terminology, illustrations, and information on patient support groups.

NATIONAL HUMAN GENOME RESEARCH INSTITUTE (http://www.genome.gov)
A website with explanations of genetic terminology and illustrations of genetic principles.

NORD (http://www.rarediseases.org)
Website of the National Organisation of Rare disorders with information on hereditary diseases, patient support groups, terminology in the genetics.

OMIM (http://www.ncbi.nlm.nih.gov/omim/)
The website of ONLINE MENDELIAN INHERITANCE IN MAN, the bible of geneticists,  with much information on genetic diseases and disease genes.

ORPHANET (http://www.orpha.net)
The Orphanet website includes information on rare (orphan) diseases and medications, with and a directory or services on specialised outpatient clinics, clinical laboratories, research activities and support groups.

PUBMED (http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=PubMed)
Website with systematic filing of almost all medical scientific publications, classified according to author or subject.

TALKING GLOSSERY OR GENETIC TERM (http://www.genome.gov/glossery.cfm)
Website with explanation of the terminology used in genetics with a lot of illustrations.

UNDERSTANDING GENE TESTING (http://www.accessexcellence.org)
Website with information on genetic counselling and genetic testing.

YOUR GENES YOUR HEALTH (http://www.ygyh.org)
Website with attractively presented information on a number of genetic syndromes such as cystic fibrosis, fragile X syndrome, hemophilia, polycystic kidney disease, Marfan syndrome, neurofibromatosis, Alzheimer disease, phenylketonuria, hemochromatosis, sickle cell anemia, thalassemia, Tay-Sachs disease and Down syndrome.







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